A friend of mine sent me an article on Scleroderma and Stem Cells. It is on the MSNBC at http://www.msnbc.msn.com/id/26841494/. Though the article is primarily about nuking the immune system and letting it regenerate itself, it has the same old stats in it.
So I replied back to my friend with
300k with the disease. 1/3rd with systemic (like me). 50% die in 5 years. Any other good news you want to tell me?She replied back all upset that she sent me it and she didn't notice that when she skimmed through the article. I told her I was just busting her chops and that those statsare something I was aware of within hours of being told I had scleroderma.
Wonder if there's any new stats around? I think they are from 2000 because I recall seeing those exact stats associated with a 2000 study. Lets all hope we're in the good 50%!
2 comments:
In October my rheumatologist spoke at our local Scleroderma Society meeting and she did report improved statistics, particularly re mortality rates for people with systemic sclerosis. Wish I could remember exact numbers for you and I don't know where, if anywhere, they've been published. So, things are looking up. Thanks for stopping by my blog and leaving a comment. Glad to hear you're doing so well. Have a great Christmas.
Here's hearing from a woman of 46 that has had progressive systemic scleroderma for 25 yrs now and tends to live to be a great old bitchy lady if possible...anything can be possible...hope faith and a beleif in more then stats.Hugggggs from Cananda
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