Friday, October 10, 2008

The stats haven't changed...

A friend of mine sent me an article on Scleroderma and Stem Cells. It is on the MSNBC at Though the article is primarily about nuking the immune system and letting it regenerate itself, it has the same old stats in it.

So I replied back to my friend with

300k with the disease. 1/3rd with systemic (like me). 50% die in 5 years. Any other good news you want to tell me?
She replied back all upset that she sent me it and she didn't notice that when she skimmed through the article. I told her I was just busting her chops and that those statsare something I was aware of within hours of being told I had scleroderma.

Wonder if there's any new stats around? I think they are from 2000 because I recall seeing those exact stats associated with a 2000 study. Lets all hope we're in the good 50%!


Bill Birtch said...

In October my rheumatologist spoke at our local Scleroderma Society meeting and she did report improved statistics, particularly re mortality rates for people with systemic sclerosis. Wish I could remember exact numbers for you and I don't know where, if anywhere, they've been published. So, things are looking up. Thanks for stopping by my blog and leaving a comment. Glad to hear you're doing so well. Have a great Christmas.

Anonymous said...

Here's hearing from a woman of 46 that has had progressive systemic scleroderma for 25 yrs now and tends to live to be a great old bitchy lady if possible...anything can be possible...hope faith and a beleif in more then stats.Hugggggs from Cananda