Well, this week I started back at work. Being out of work for 2 months had nothing to do with Scleroderma, just the economy and bad decisions by executive management. But that is behind me and I'm looking forward to the new opportunities in the new job.
Still waiting to hear when I'll come off cellcept. I'll probably contact Dr Wigley in a month or so to bring the subject up or maybe I'll just wait until July when I have my next visit.
Everything remains stable and well as far as I can tell. I really tried to make sure I didn't get too stressed out over these past 2 months, as stress seems to be a big factor in flare ups and I didn't want to find out if that theory was right or not.
All the best!
Wednesday, April 15, 2009
Back at work!
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7 comments:
thank you for the info. yes, I am currently taking cellcept which was supposed to hold me over until i could get a lung. That is when I decided to take matters into my own hands and go for the stem cell transplant. I was told i would only have a year left at best. My prayers are with you. it's supposed to be 70 by Saturday finally!
that previous post was left by me. My Dr. wants to start me on Tracleer. Have you heard of anyone taking it? it's going to be 80 on Saturday
Mike
mikeadamsscleroderma.blogspot.com
I think Tracleer isn't used to address scleroderma but Pulmonary Arterial Hypertension (PAH). You might have developed PAH because of scleroderma but I don't think Tracleer is prescribed to combat the core disease.
I'm not a doctor but that was my understanding.
New to being diagnosed with Systemic scleroderma. Currently on 8 mg /day of steroids and methotrexate 10 mg / week. Can't say I am seeing any major changes except my legs are not as taut. Find all your comments extremely interesting. Thank you
I just found your blog, I am newly diagnosed....looking for info....
http://nancy-whenlifedealsalemon.blogspot.com/
I started a blog too
all the best
Nancy, also in Northeast
thanks for the tidbit about the ANA test..I will put a bug in my Drs. bonnet
My best to you....
Your symptoms and mine are much alike except that my forearms are firm up to my elbows. Are you using any skin creams?
POP on over anytime, I welcome you/your input!
Why have you stopped writing?
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