Starting last Weds (10/17), I felt some fibrosis in my left arm. On Sunday, my hips started hurting. The fibrosis in my left arm is much better, but my hips are still "rubbing" a lot. When I walk, if I put my hands on my hips, I can feel the rubbing. I can feel it without doing that but I could show my wife what was going on.
I emailed Dr Wigley at the Scleroderma Center at Johns Hopkins and he recommended I go back to 3 cellcept pills twice a day. It was knocked down to 2 pills twice a day after my last visit. He asked that I contact him again in 3 weeks.
Hopefully before Thanksgiving the fibrosis will be back in check.
Wednesday, October 24, 2007
A bit of a set back
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1 comment:
Hi, there fellow traveler
I am a 43-yo married mother of two sons. I started having huge problems with Raynaud's last fall and was diagnosed with diffuse SD last May. Things really started going downhill at that point.
I have been a patient of Dr. W for a few months now and just started on Cellcept a few days ago. I swear I can already see small improvements. Amazing!!
Anyway, you can write me if you're interested. legg3819@yahoo.com
thanks
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