I never heard of scleroderma until I was diagnosed with it. Now that I have it, I'm interested in any news related to scleroderma. So here's the methods I use. If anyone has other methods, please post them.
Yahoo Groups is a community platform where members of individual groups can post/email messages and every other member of the group can view them as individual emails, daily digest emails, or via a web interface. You can go to http://groups.yahoo.com and search on scleroderma. I currently joined the following groups - sclerodermasupport2, sclerodigest & SDWorld.
Another way to stay informed is to sign up for the Scleroderma Foundation weekly newsletter at http://www.scleroderma.org/e_letter_signup.shtm
I also created a Google Alert at http://www.google.com/alerts on scleroderma and had Google send me the alert once a day. It contains the title of news articles and other blog entries that mentioned scleroderma along with a short blurb and link to the actual content on the web.
Thursday, February 8, 2007
How I stay current with Scleroderma
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As with any disease,scleroderma also effects the whole family. Aside from the emotional aspect, physical aspects may begin to take a toll on caretakers. It is important to remember that to take care of someone you need to also take care of yourself. This is not to minimize the effects of scleraderma on the individual but remind those of the bigger picture.
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