tag:blogger.com,1999:blog-2026605810085414094.post4876944054892697335..comments2008-08-03T13:58:05.159-05:00Scleroderma Bloghttp://www.blogger.com/profile/06757088123877348789noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2026605810085414094.post-83829687713032290632008-08-03T13:58:00.000-05:002008-08-03T13:58:00.000-05:00

I found your blog 2 nights ago and keep coming back to reread it. I am a 35 year old female also from the northeast with children. I was diagnosed with scleroderma this past spring and can't tell you how much comfort your words have given me. I have felt so alone with this "new reality" and have been on such a roller coaster of emotions. Our stories are eerily similar in terms of detection,

Jenniferhttp://www.blogger.com/profile/08009441673824895224noreply@blogger.comtag:blogger.com,1999:blog-2026605810085414094.post-78419695125180109242008-07-13T00:26:00.000-05:002008-07-13T00:26:00.000-05:00

Thank you so much for your blog. My sister(40) was just diagnosed with schlerodrema We are trykng to get all the information that we can. She is currently taking methodrextrate and Humira. Iappreciate your information. She is seeing a specialist at UCLA as we live in Southern California

Young Creationshttp://www.blogger.com/profile/05218341139327068514noreply@blogger.comtag:blogger.com,1999:blog-2026605810085414094.post-9629914153022032752008-07-09T21:29:00.000-05:002008-07-09T21:29:00.000-05:00

Thanks everyone. <BR/><BR/>Lauren - Yes, "Wiggles" is the man!!<BR/><BR/>April - Why are they putting you back on cellcept? Is there a change? I've had no adverse reactions to any of the medications they have given me so I'm in no rush to stop any of them if they are keeping things in check. <BR/><BR/>Danielle - My understanding is that the disease has an active state where it's doing damage and

Scleroderma Bloghttp://www.blogger.com/profile/06757088123877348789noreply@blogger.comtag:blogger.com,1999:blog-2026605810085414094.post-28676644581987592202008-07-09T19:57:00.000-05:002008-07-09T19:57:00.000-05:00

Hi!<BR/>Thank you for your blog - it's put my mind at ease while I wait for repeat blood tests to come back. I do have two questions, does the cycle end and stay gone for awhile, or is it a never-ending start and stop of the 18-24 month cycle?? And, did you test positive on any of the ANA tests?<BR/><BR/>Thank you!<BR/>Danielle

Daniellehttp://www.blogger.com/profile/09956980146765064300noreply@blogger.comtag:blogger.com,1999:blog-2026605810085414094.post-55617387305699269722008-06-19T22:29:00.000-05:002008-06-19T22:29:00.000-05:00

Hi - great news about your visit. I especially liked your sense of humor about the golf game. I go to Wigley too and feel the same way as you and Lauren..Hi Lauren - haven't talked to you in a long time. I have actually been off cellcept for a year and they are thinking about putting me back on. I wish you all well....

april05noreply@blogger.comtag:blogger.com,1999:blog-2026605810085414094.post-53017085184164852462008-06-19T11:31:00.000-05:002008-06-19T11:31:00.000-05:00

Hi, there<BR/>Glad things are going so well! I posted to you a few months ago. I am a 43-yo mom of 2 and also a patient of Dr. W. (I call him Wiggles!) We have almost the same story...18 months ago I was very very sick, very impaired, getting worse every day. Now, since I have been on Cellcept (4 per day) since last Halloween, I have my life back and this whole thing is pretty much a non-issue.

lauren.paulhttp://www.blogger.com/profile/17269920866603320048noreply@blogger.com