tag:blogger.com,1999:blog-2026605810085414094.post1669784966581689991..comments2023-12-07T13:18:41.882-05:00Comments on Scleroderma Blog: Summer 2010 Scleroderma UpdateScleroderma Bloghttp://www.blogger.com/profile/06757088123877348789noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2026605810085414094.post-29724748740887574872010-10-19T20:48:47.361-05:002010-10-19T20:48:47.361-05:00Thanks for your blog. I found a link to it from my...Thanks for your blog. I found a link to it from my dad's blog. He also has scleroderma and has just had a finger amputated today from complications. He has major GI involvement and also had a pic line inserted so he can take a tpn feed (feed into bloodstream, bypassing the gut). the gi doctor is hopeful it will cause him to gain about 20lb in 2 months!<br />If you are so inclined, I'm Lisahttps://www.blogger.com/profile/07306375600166147630noreply@blogger.comtag:blogger.com,1999:blog-2026605810085414094.post-21273413120049885942010-09-07T11:15:40.880-05:002010-09-07T11:15:40.880-05:00http://www.scleroderma.org/chapter/newengland/2010...http://www.scleroderma.org/chapter/newengland/2010NorthShoreWalk.htm<br /><br />I am Nancy, I have SD, too I live in Southern NHAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2026605810085414094.post-20299986360556561032010-08-07T11:15:58.050-05:002010-08-07T11:15:58.050-05:00Hi there. For a while now. I've been tuning in...Hi there. For a while now. I've been tuning into open blogs/diaries by people with chronic illness... Scleroderma and Myositis, in particular. It's a quiet connection I've learned to appreciate. Because it can all be so challenging...<br /><br />Just want to say hello. And thanks for putting your words - and yourself - out there!simonehttps://www.blogger.com/profile/18272510231876581109noreply@blogger.comtag:blogger.com,1999:blog-2026605810085414094.post-57818824164786961322010-08-06T00:43:09.183-05:002010-08-06T00:43:09.183-05:00I see Dr. Ami Shah at the Johns Hopkins Scleroderm...I see Dr. Ami Shah at the Johns Hopkins Scleroderma Center. I love her b/c she is very thorough but not an alarmist. I have so much going on, and she helps me prioritize it all. I'm a nurse (I just retired my stethescope thanks to scleroderma a few days ago, after trying to keep up for the last 2yrs), but you know how us nurses make the worst patients. I don't know how I managed Krissyhttps://www.blogger.com/profile/00568603286228776247noreply@blogger.comtag:blogger.com,1999:blog-2026605810085414094.post-24817151552520676122010-08-03T20:02:26.873-05:002010-08-03T20:02:26.873-05:00Hi:
Glad to hear thyat you have recovered from thi...Hi:<br />Glad to hear thyat you have recovered from this terrible disease. I was recently diagnosed and live in South Jersey. Would you be kind enough to refer me to the RHEMY doctor/s that helped you get to John Hopkins. I am determined to beat this thing and any/all help would be greatly appreciated. My e-mail is blgjerzee@hotmail.com.Anonymoushttps://www.blogger.com/profile/18266133072007040611noreply@blogger.comtag:blogger.com,1999:blog-2026605810085414094.post-47897273773301434942010-07-24T04:50:00.614-05:002010-07-24T04:50:00.614-05:00Oh my that sounds just terrific! I'm so happy ...Oh my that sounds just terrific! I'm so happy for you. All the best!<br />Emmi from Living with Scleroepasenhttps://www.blogger.com/profile/12462819585060577923noreply@blogger.com